Each day came with an anticipation of ways to fill the day
with two young children and ended with a feeling that I wasn’t doing enough. My mind was full of contradictions and
confusion. I looked forward to going to work, but hated taking care of other
people’s babies when mine seemed to need so much. I liked to stay at home with
my kids, but I wanted to get out of the house and try to focus on something
else. However nothing seemed to be able
to tear my mind away from focusing on what I should be, could be, or would be
doing if things had turned out differently.
Oli was actually a very happy and easy baby. When she learned to smile she smiled all of
the time. She started to coo and babble, giggle, reach for toys, and bounce in
her bouncy seat. She seemed to be
developing as a regular baby despite her blindness. By the time she was 5 months old and meeting
her developmental milestones I wondered if maybe the doctors were
wrong. Maybe despite all of her quirks
she was actually pretty typical. I still
worried about her, but I had a little bit of hope again that her blindness
would be her only hurdle in life. I was slightly more comfortable with the idea of her disability and
even began to enjoy hearing stories about inspiring blind adults and
children. I would think, Yes, Oli can do those things too!
But then I would remember that the specialists had warned me that the developmental gap between her and other children would only widen as she got older. My life had become a series of these highs and lows. I would just reach the top of one peak only to come crashing down the other side.
But then I would remember that the specialists had warned me that the developmental gap between her and other children would only widen as she got older. My life had become a series of these highs and lows. I would just reach the top of one peak only to come crashing down the other side.
You see I was on a
roller coaster ride and I couldn’t figure out how to get off.
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